here is a link you should read. Finding out your child has coeliac disease is such a stressful thing, even though you know it is better than say, a diagnosis of cancer, or anaphylaxis, it's still awful to know that your child can never go anywhere and just eat what they want again in their life - not unless they want to be very very ill, immediately or in the future. even nearly 9 months after Rora's diagnosis, and even with how well we've all adapted, I feel like crying at knowing this is forever.
here is another great post written by a parent whose 2yo was diagnosed with celiac disease. Stephanie wrote the Year of Slow Cooking blog (and book)
I can relate to so much of what she's written in the post.